NHS Digital Data Collection - Planning and Research

NHS Digital is the part of the NHS responsible for supporting health and care planning in England through the collection of pseudonymised data.

There is a new data collection planned called the "General Practice Data for Planning and Research" and patients have until 1st September to decide whether they want their data included in this extraction. 

As a practice we are legally required under Section 259 (1)(a) and 259 (5) of the Health and Social Care Act to release this information.

We have put together some links and videos with useful guidance to help you understand what this means to you. 

If you want to know more about what this entails and the different ways you can opt-out please read on.

The NHS Digital links above provide detailed information about your options and explanations about the difference between the two types of opt-out, The Type 1 and National Data Opt-out. A brief overview can be found here . 

We have included below a helpful flow chart with additional information available in this document Data Sharing Flow Chart & Useful Information.

To express your data sharing preferences you will need to do the following:

Type 1 Opt-Out - Fill in this form and return to your GP Surgery

National Data Opt-Out - visit Your NHS Data Matters on the NHS Website